How frustrating for you.
It seems like you’ve done all you can from a western medicine point of view and it does sound like you’ve been tested for all serious diseases and causes, so that can put your mind to rest to some degree.
The problem with western medicine, is they aren’t very good at looking at causes, they tend to just treat symptoms. And a lot of causes cannot be found using the non-wholistic blood tests and scans approach.
How has Huel been for you? I’m interested to know how and if you’ve been using it as a regular part of your diet and if this has in any way improved the issue.
I’d say, if you’ve been consuming Huel regularly, you probably aren’t deficient in any nutrients so that at least rules nutrition out as the cause.
Unless there’s something you are eating that you are intolerant to that is causing a histamine response.
There is one other approach you could consider (if you haven’t already), and that’s seeking advice from a holistic practitioner. Personally I would recommend the Ayurvedic diagnostic approach over and above any others, but the Chinese medicine system is also one that is well respected.
If you can find a highly qualified and well-respected Ayurvedic practitioner (really do your research and don’t go to someone who is not trained and qualified), you will find their approach holistic, sincere and refreshing in comparison to western medicine. They use observations such as the pulse, the colour and temperature of your skin, eyes, mouth, tongue, lifestyle, constitution, diet, and so much more, to look at your health as a whole, and make recommendations for positive change which often involves advice on some simple exercises, lifestyle changes, herbal supplements or teas, diet changes etc etc.
If nothing else, you will feel really heard and listened to, probably for the first time, and this is half the battle - to get a professional to really fully understand what is affecting you.
I’ve had really very positive results from seeing Ayurvedic doctors.
Chinese medicine is also highly rated, especially treatments such as acupuncture or acupressure.
Also, don’t dismiss the positive results you can get from many bodywork practices - massage, reflexology, lymphatic drainage treatments. Sometimes these treatments can help your body heal itself and they make you feel emotionally fantastic too - it’s a treat for your body and soul !
If you’ve given up on GPs, don’t give up on yourself. Explore the alternatives and find someone / something that resonates for you personally and don’t be afraid to try a few things until you find something that feels helpful.
Also, sometimes a skilled reflexologist or massage therapist can diagnose conditions that the GP hasn’t considered, by noticing blockages in your body.
I’m a great believer in alternative holistic medicine and my health was far better when I stuck to just this, and before I allowed the GPs to persuade me to take their pills, that just caused problem after problem.
Always do your research though - there are really good people out there, but far more who really don’t know what they are doing but talk a good talk…